I'm Aware That I'm Rare: the phaware® podcast
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I'm Aware That I'm Rare: the phaware® podcast
I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from me...
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1117 episoder
Jennifer Keeley, DPN and Mary Whittenhall, MSN - phaware® interview 550
Jennifer Keeley and Mary Whittenhall, experienced nurse practitioners in the field of pulmonary hypertension, discuss the management of cough in patie...
Episode 550 - Jennifer Keeley, DPN and Mary Whittenhall, MSN
Jennifer Keeley and Mary Whittenhall, experienced nurse practitioners in the field of pulmonary hypertension, discuss the management of cough in patie...
Ashlee Gambino - phaware® interview 549
My name is Ashlee "The Mobwife" Gambino. I'm a retired professional fighter. I've acted. I've done a lot of different things. I am now diagnosed with...
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Episode 549 - Ashlee Gambino
FIGHTER TO SURVIVOR: ASHLEE GAMBINO'S BATTLE BEYOND THE RING
In this gripping episode, Ashlee "The Mobwife" Gambino shares her journey...
Sophia Esteves - phaware® interview 548
Scars and Survival: Rebuilding Life After a Devastating Diagnosis
After countless hospital stays, new medications, and near-breaking po...
Episode 548 - Sophia Esteves
Scars and Survival: Rebuilding Life After a Devastating Diagnosis
After countless hospital stays, new medications, and near-breaking po...
Richard Channick, MD - phaware® interview 547
The Silent Rise of Chronic Pulmonary Embolism and the Tech That's Changing Everything
From portable ECMO to catheter breakthroughs, the...
Episode 547 - Richard Channick, MD
The Silent Rise of Chronic Pulmonary Embolism and the Tech That's Changing Everything
From portable ECMO to catheter breakthroughs, the...
Jenny Yang, MD - phaware® interview 546
The One Type of PH You Can Actually Cure
Dr. Jenny Yang dives into the rare but life-changing world of CTEPH, the only form of pulmonary...
Episode 546 - Jenny Yang, MD
The One Type of PH You Can Actually Cure
Dr. Jenny Yang dives into the rare but life-changing world of CTEPH, the only form of pulmonary...
Victor Test, MD - phaware® interview 545
The Diagnosis Delay That's Still Hurting Patients
Despite better tools and more awareness, people with PH are still being diagnosed too...
Episode 545 - Victor Test, MD
The Diagnosis Delay That's Still Hurting Patients
Despite better tools and more awareness, people with PH are still being diagnosed too...
LaRae Hacker - phaware® interview 544
How TBX4Life Is Fueling a Global Collaboration
LaRae Hacker never set out to become a rare disease advocate—but when her daughter's TBX4...
Episode 544 - LaRae Hacker
How TBX4Life Is Fueling a Global Collaboration
LaRae Hacker never set out to become a rare disease advocate—but when her daughter's TBX4...
Anthony Carrasco - phaware® interview 543
How I Survived Meth Addiction, Lung Failure, and Found Purpose
Anthony Carrasco was a meth addict by 15, and nearly dead by 35. Diagnose...
Episode 543 - Anthony Carrasco
How I Survived Meth Addiction, Lung Failure, and Found Purpose
Anthony Carrasco was a meth addict by 15, and nearly dead by 35. Diagnose...
Brandon Jakubowski, MD - phaware® interview 542
Treating Meth-Associated PAH Without Judgment
Dr. Brandon Jakubowski takes us into the underrecognized world of stimulant-induced pulmon...
Episode 542 - Brandon Jakubowski, MD
Treating Meth-Associated PAH Without Judgment
Dr. Brandon Jakubowski takes us into the underrecognized world of stimulant-induced pulmon...
Nicholas Kolaitis, MD - phaware® interview 541
The Face of Addiction Isn't Who You Think It Is
Once thought to be a West Coast issue, methamphetamine-associated pulmonary hypertension...
Episode 541 - Nicholas Kolaitis, MD
The Face of Addiction Isn't Who You Think It Is
Once thought to be a West Coast issue, methamphetamine-associated pulmonary hypertension...
Peter J. Leary, MD - phaware® interview 540
How Stigma Blocks Meth-PAH Treatment and How to Stop It
Patients with methamphetamine-associated-PAH often arrive at clinics already car...
Episode 540 - Peter J. Leary, MD
How Stigma Blocks Meth-PAH Treatment and How to Stop It
Patients with methamphetamine-associated-PAH often arrive at clinics already car...
Vinicio de Jesus Perez, MD - phaware® interview 539
The Hidden Epidemic: Meth and PH
Meth-Associated PAH is on the rise across the United States, yet many patients are not receiving the treatment...
Episode 539 - Vinicio de Jesus Perez, MD
The Hidden Epidemic: Meth and PH
Meth-Associated PAH is on the rise across the United States, yet many patients are not receiving the treatment...
John Kingrey, MD - phaware® interview 538
Dr. John Kingrey exposes the rising crisis of meth-associated pulmonary hypertension, a condition spreading fast across the U.S. He challenges misconc...
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Episode 538 - John Kingrey, MD
Dr. John Kingrey exposes the rising crisis of meth-associated pulmonary hypertension, a condition spreading fast across the U.S. He challenges misconc...
Kari Gillmeyer, MD, MSC - phaware® interview 537
Delays in diagnosing and treating pulmonary hypertension (PH) can have life-altering consequences. In this episode, Dr. Kari Gillmeyer, discusses her...
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Episode 537 - Kari Gillmeyer, MD, MSC
Delays in diagnosing and treating pulmonary hypertension (PH) can have life-altering consequences. In this episode, Dr. Kari Gillmeyer, discusses her...
Eric Borstein - phaware® interview 536
A 200 Mile Journey from LA to San Diego to Raise Awareness for PH
When Eric Borstein collapsed in his bedroom in 2020, doctors gave him...
Episode 536 - Eric Borstein
A 200 Mile Journey from LA to San Diego to Raise Awareness for PH
When Eric Borstein collapsed in his bedroom in 2020, doctors gave him...
Akshay Muralidhar, MD - phaware® interview 535
Dr. Akshay Muralidhar, Co-Director of the Pulmonary Hypertension Center of Excellence at Arizona Pulmonary Specialist in Phoenix, discusses the import...
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Episode 535 - Akshay Muralidhar, MD
In this episode, Dr. Akshay Muralidhar, Co-Director of the Pulmonary Hypertension Center of Excellence at Arizona Pulmonary Specialist in Phoenix, dis...
Raj Parikh, MD, MPH - phaware® interview 534
Dr. Raj Parikh from Hartford Hospital discusses building on foundational pathways with treatment options for Pulmonary Arterial Hypertension (PAH) pat...
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Episode 534 - Raj Parikh, MD, MPH
Dr. Raj Parikh from Hartford Hospital discusses building on foundational pathways with treatment options for Pulmonary Arterial Hypertension (PAH) pat...
Robert Frantz, MD - phaware® interview 533
Dr. Robert Frantz breaks down the key metrics behind risk stratification—functional class, six-minute walk distance, and brain natriuretic peptide lev...
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Episode 533 - Robert Frantz, MD
Dr. Robert Frantz breaks down the key metrics behind risk stratification—functional class, six-minute walk distance, and brain natriuretic peptide lev...
Jean M Elwing, MD - phaware® interview 532
ICU & You: What Happens When Pulmonary Hypertension Turns Critical?
Pulmonary hypertension is already a complex condition, but what happ...
Episode 532 - Jean M Elwing, MD
ICU & You: What Happens When Pulmonary Hypertension Turns Critical?
Pulmonary hypertension is already a complex condition, but what happ...
John Granton, MD - phaware® interview 531
Dr. John Granton, a critical care and transplant physician at Toronto General Hospital, shares his journey in pulmonary hypertension and lung transpla...
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Episode 531 - John Granton, MD
Dr. John Granton, a critical care and transplant physician at Toronto General Hospital, shares his journey in pulmonary hypertension and lung transpla...